Ryan Stanford's experiences as a sufferer of Alpers' Syndrome prove that despite the disease's rarity, it has an immense impact on the lives of those it affects. With so little public awareness of Alpers' Syndrome, and a corresponding lack of research funding, Ryan's plight has not received the attention that other conditions attract.
But although any treatments won't arrive in time to help Ryan, his parents want to use the Ryan Stanford Appeal to raise awareness of the disease and fund research into this terrible condition. Future sufferers of Alpers' Syndrome might benefit greatly from treatments and remedies which haven't been discovered yet - with the help of kind donations and sponsorships, Ryan's legacy can be one of hope for children who, in years to come, will find themselves in his position.
If you can do anything at all to help Ryan and his family in the tough times ahead, or help to raise wider awareness of Alpers' Syndrome so that a cure might be found, please get in touch.
Here is just a small list of fundraising ideas which you might wish to take part in to help raise funds for our appeal.
We have charity places for the Great North Run over in Newcastle and our fundraisers have taken part in other runs local to their area such as the Blackpool 10K, Great Manchester Run etc.
If you are interested in taking part in a sponsored running event, please contact us and we will do all that we can to help you achieve this!
If you are interested in taking part in a sponsored swimming event, whether it be indoor or outdoor, please contact us.
If any golf clubs would be willing to let us organise a sponsored golfing event at your venue, please let me know!
4.SPONSORED PARACHUTE JUMP
Would you consider doing a solo static line parachute jump or a tandem skydive?We have a local parachute centre based in Cockerham, near Lancaster where you could do it!
You could do your sponsored parachute jump for FREE if you are able to raise at least :
£390 for static line solo parachute jump
£450 for tandem skydive
If you would prefer to take part in a sponsored parachute jump closer to you, please get in touch with us and we will see what we can arrange for you!
5. MOUNTAIN CHALLENGES
If anybody would like to take part ina mountain challenge (ie. Three Peaks - Ben Nevis, Scafell and Snowden in 24 hours, Yorkshire Three Peaks, Coast to Coast.....) or even a more challenging 15 peaks of Snowden for active mountain walkers already, please contact us on firstname.lastname@example.org.
Should you wish to do any form of fundraising for the appeal, please don't hesitate to contact us.
We can provide you with sponsorship forms etc. You can now set up your own fundraising page on Just Giving - the online donation website - www.justgiving.com/ryanstanford. Your friends and family will be able to sponsor you from your own page.
Please also keep up to date with our latest information on our Facebook page by typing "Ryan Stanford Appeal" into the search box.